Our beautiful baby girl Sophie Atay was born fit and healthy on 15 November 2007 at the Queen Elizabeth Hospital in Gateshead, Tyne and Wear.
One day whilst drying Sophie after her usual bath I felt a lump on the left side of her tummy. After numerous and frustrating hospital visits over a 10 day period Sophie was diagnosed with neuroblastoma stage 4 (high risk) on Monday 16 February 2009.
I will never forget that day! Her cancer had spread to her bone marrow. She was just 15 months old. Neuroblastoma is a rare and aggressive malignant cancer with horrendous survival rates as low as 20%. Relapse is very common which is reflected in the survival rate. If relapse does occur there is no cure at the moment in the UK.
Sophie had a long and tough road ahead of her. She was on the high risk UK treatment protocol which involves 70 days of aggressive chemotherapy, surgery to remove the primary tumour, a stem cell rescue which involves wiping out her immune system, 14 days of radiotherapy and 6 months of accutane (oral chemotherapy). Such a tough regime to be given such low percentage of survival!
Sophie was a gorgeous, inspiring little girl. It was devastating to find out that she was affected by such an aggressive killer disease at such a young age. Sophie was just 15 months old at diagnosis. Most children who get this cancer are younger than five years old. Neuroblastoma is the second most common solid tumour in childhood and makes up 8% of the total number of children's cancers.
Sadly Sophie lost her battle to this monster and gained her angel wings on the 11th March 2010 aged only 2 years. The New Toma Fund is dedicated to the memory of Jordan David Thompson and Sophie Ela Atay, cousins cruely taken from us far too soon-Gone but never forgotten!
“We believe she was sent to us to raise awareness of this disease and to make more people realise that more research is needed.
We've added a touch of Purple to this page as it was Sophie's favourite colour.
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